The Scleroderma Book: A Guide for Patients and Families |  | Author: Maureen D. Mayes M.D.
Publisher: Oxford University Press, USA
Category: Book
List Price: $29.99
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Seller: brudel_books
Rating:  14 reviews
Sales Rank: 632,652
Media: Hardcover
Edition: 2
Pages: 224
Number Of Items: 1
Shipping Weight (lbs): 0.7
Dimensions (in): 8.2 x 5.8 x 0.8
ISBN: 0195169409
Dewey Decimal Number: 616.544
EAN: 9780195169409
ASIN: 0195169409
Publication Date: May 1, 2005
Availability: Usually ships in 1-2 business days
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| • | ISBN13: 9780195169409 | | • | Condition: New | | • | Notes: BUY WITH CONFIDENCE, Over one million books sold! 98% Positive feedback. Compare our books, prices and service to the competition. 100% Satisfaction Guaranteed |
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Product Description
The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. The new edition has updated chapters on the genetics of scleroderma and on new treatments for complications of this disease. Touching on virtually every aspect of this disorder, The Scleroderma Book provides a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease. Endorsed by the leading national advocate group, The Scleroderma Foundation
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| Customer Reviews:
Showing reviews 1-5 of 14
 Highly Recommended Reading For Scleroderma Patients November 22, 1999
r.eiter@att.net (Providence, Rhode Island)
15 out of 15 found this review helpful
This is a balanced and informative book, so much so that I am passing it on to my doctor with the recommendation that he tell all his scleroderma patients about it. I've learned a lot through the internet and by careful observation of what's going on with subtle physical changes we experience with scleroderma. This book does a great job of tying it all together in an easily understood presentation that's helpful as well for family and support groups.
Highest Endorsement from International Scleroderma Network March 14, 2001
Shelley L. Ensz (Edina, MN USA)
13 out of 14 found this review helpful
As President of the International Scleroderma Network (www.sclero.org), this is one of my favorite books to recommend for all scleroderma patients and their family and friends.
Dr. Mayes is a world leader in the field of scleroderma and her clinic is a member of the international Scleroderma Clinical Trials Consortium (SCTC).
Moreover, Dr. Mayes is an extremely popular speaker at scleroderma events, due to her clear, friendly, and down-to-earth style. I have met her, and I have also heard from a great many of her patients, all of whom have spoken very highly of her.
If your life has been affected by scleroderma, GET THIS BOOK NOW. You'll be happy you did!
I have Scleraderma November 6, 2000
SuzinML (Chicago,IL.)
7 out of 8 found this review helpful
Being diagnosed with this disease was overwhelming for myself and my family. There were so many questions. Where were the answers? I was being treated by a doctor specializing in rheumatoid arthritis. I hit the internet and found a "specialist" in my metro. area. I am now under the care of Dr. Maureen Mayes. At this time her book had not yet been released. I feel lucky that I have her knowledge in treating scleraderma and in her book she can share that expertise with others. The book has been extemely helpful in explaining to family and friends what scleraderma is and how it can be treated.
A must have for the newly diagnosed. May 16, 2001
3 out of 3 found this review helpful
Before this book my husband and I felt lost trying to find answers. It answered all of our questions from what lab work needed to be done to why I might be having certain symtoms. I even recommended this to my Docter to tell his other patients about. This is a must for everyone diagnosed and family alike.
comprehensive and clearly written October 21, 2001
1 out of 1 found this review helpful
As a nurse practitioner, I felt that the info in this book was very comprehensive... I also felt that the language was well written in commonly-used descriptive terms, so that any lay person could also understand the content. Very helpful info and practical advice.
Showing reviews 1-5 of 14
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